Alberta Pituitary Patient Society (APPS)

The Alberta Pituitary Patient Society

The Alberta Pituitary Patient Society is a volunteer organization with the goal to support all people with pituitary related diseases and disorders in leading full, productive lives.

Until recently, no support group for pituitary disorders existed within Alberta or Canada. Pituitary patients and caregivers were largely left to navigate a complicated and disconnected health-care system on their own with only the support of isolated physicians. There was no opportunity for patients to connect with each other or professionals beyond their immediate physicians. APPS is here to help bridge that gap.

A little history 

APPS was founded in 2016 by a group of Alberta pituitary patients.  The APPS Board of Directors provides the APPS with governance as well as the time and effort for strategy and action. Board members come from the patient and caregiver populations, the health-care community, and other sectors. The Board can have up to 15 members and aims to represent each of the major pituitary disorders. Funding for APPS activities may come from individual members, fundraising activities, or contributions from the private sector and government.

The APPS is supported in its work by a network of physicians and surgeons. The APPS supports the work of the Canadian Pituitary Patient Network (CPPN) and aims to provide services at the regional level which do not duplicate the efforts of the CPPN or other organizations providing excellent service in the field. One of the APPS’s goals is to reach every Alberta pituitary patient to help make sure that none of them feels forgotten or alone. 

Our vision

We envision a time when the challenges faced by pituitary patients are minimal. Alberta will be a region where pituitary patients never feel alone and do not have to navigate a complex health-care environment alone.

Who we help 

The APPS is a charitable society serving those affected directly or indirectly by pituitary disorders and those working to care for pituitary patients. Pituitary disorders include acromegaly, Cushing’s disease, hypopituitarism, non-functioning adenomas, and prolactinomas, among others.

How we help

Throughout the patient journey—searching for a diagnosis, diagnosis, treatment, monitoring—pituitary patients experience events and challenges only others in a similar situation can truly understand. It’s more than just the physical challenges. Access to the right medical team, transportation, finances, relationships, physical changes, work, mental health, and a host of other issues affect quality of life. The Alberta Pituitary Patient Society is dedicated to providing a forum where patients, caregivers, and others can be connected, share experiences, learn about pituitary disorders, and discover supports to help them live life to its fullest.

Our goals

  • Promote and/or provide education for patients, caregivers, health-care professionals, government officials, regulators, and the public.
  • Promote and/or provide opportunities for social support and interaction among patients and caregivers.
  • Offer patient support
  • Support research activities and participate in therapy approval processes as appropriate.
  • Connect with every pituitary patient in the province (to the extent they wish).
  • Develop an effective organization that can support a geographically distributed membership and Board of Directors.