The mission of the APPS is to provide support and education for patients, caregivers and healthcare providers in the Alberta pituitary community to enable them to do what is necessary to ensure pituitary patients live fulfilling lives.
THE FUTURE IS BRIGHT
The Alberta Pituitary Patient Society (APPS) was founded in 2016 by a group of Alberta pituitary patients to support each other. The APPS Board of Directors provides the APPS with governance as well as the time and effort for strategy and action. Board members come from the patient population, caregivers, the health care community and from other volunteers. The Board can have up to 15 members and aims to represent each of the major pituitary disorders. Funding for APPS activities may come from individual members, fund raising activities or contributions from the private sector and government.
The APPS is supported in its work by a network of physicians and surgeons. The APPS supports the work of the Canadian Pituitary Patient Network (CPPN) and aims to provide services at the regional level which do not duplicate the efforts of the CPPN or other organizations providing excellent service in the field. One of the APPS’s goals is to reach every Alberta pituitary patient to help make sure that none of them feel forgotten or alone.
We envision a time when the challenges faced by pituitary patients are minimal. Alberta will be a region where pituitary patients never feel alone and do not have to navigate a complex healthcare environment alone.
The APPS is a non-profit organization serving those impacted directly or indirectly by pituitary disorders (Acromegaly, Cushings Disease, Hypopituitarism, Non-functioning Adenomas, Prolactinomas and others) and those working to care for pituitary patients.
Throughout the entire patient journey (searching for a diagnosis, diagnosis, treatment, monitoring), pituitary patients experience events and challenges that only others in a similar situation can truly understand. Its more than just the physical challenges. Access to the right medical team, transportation, finances, family relationships, physical changes, social relationships, work, mental health, medications and a host of other issues impact quality of life. The Alberta Pituitary Patient Society is dedicated to providing a place where patients, caregivers and others can stay connected, share experiences, learn about pituitary disorders and find ways to live life to its fullest.
Alberta Pituitary Patient Foundation - National Charity
Telephone toll-free: 1-844-532-7134
Registered Charity No.: 77672 1318 RR0001
Mailing Address: Suite 168, 9768-170 Street NW, Edmonton, Alberta T5T 5L4
COPYRIGHT @ 2018
ALBERTA PITUITARY PATIENT SOCIETY
Official name: Alberta Pituitary Patient Society
Founded: Alberta on September 12, 2016 under the Societies Act of Alberta
Designation: Charitable Organisation
Business number: 77672 1318 RR0001
Registered Address: Suite 168, 9768 - 170 Street, Edmonton, Alberta, T5T 5L4